and the European Court of Human Rights blocked him from travel to the U.S. for experimental treatment for which Gard’s parents raised over $1.7 million. The court labeled the Gard’s appeal case “inadmissible” and upheld the previous decision of the U.K. High Court, saying their decision in Gard’s case was “final.” Gard was born with encephalomyopathic mitochondrial DNA depletion syndrome (MDDS), which causes gradual muscle weakening and brain damage.
Gard’s parents refused on the grounds that they wanted to take Gard to the U.S. for a treatment known as nucleoside, which a doctor from the U.S. said he would be willing to perform. “To withdraw life support against somebody’s will when they have hope of a treatment that either could extend their life or, who knows how long it could extend it, who knows what kind of quality of life may or may not be available — to take away that hope and say ‘you’re life is worth nothing’ I think is wrong on every level,” Dr. Brian Callister of Nevada said after the European Court ‘s decision. Callister said it was wrong of the court to deny his family the opportunity to seek treatment. Gard’s parents, Chris Gard and Connie Yates from Bedfont in west London, decided to donate the raised money for treatment of other children suffering from the same mitochondrial disease.